So Frustrating.... and also Biopsy's

                   Last Wednesday we had the appt. with the new specialist.   He was super nice.  But when I walked in I thought I had some answers, when I walked out, I had none!  He was very professional and very kind, but he just wouldn't say one way or the other about what it might be.  He wouldn't tell me it still wasn't cancer, he wouldn't say it was Osteoblastoma either.   He just wouldn't say one way or the other.  He was concerned about the rate of growth, and with Cameron's hearing.  So he sent us next door, which was in the same building, just across the hall to do a hearing test.   That was the highlight of Cameron's whole day.   They said that his nerve is still great and he can hear really well from that, its the canal that has the obstruction.  Which we knew already.   His ear canal is being pushed down and blocking his ear drum and 2 of the 3 bones in his ear are eroded.  His hearing was very bad on that side.
       Then the doctor said that he wanted a biopsy done and went to schedule it.  He came back and said that it was scheduled for the next day.  The hospital called and said he couldn't eat or drink after 9pm.  So we had to scramble to get him ready for a small surgery.  The only thing he complained about was that he was hungry and thirsty. And the most of that happened when he was given the medicine to relax.   We were told to be there at 115, and the surgery would be at about 3-330.  They didn't come to take him back until after 4.  Then he was in surgery for an hour and then recovery for awhile.  They called me to come back to the recovery room before he fully woke up.  That made me feel better.   I don't know about Cameron, but it sure did me.    It took awhile for him to wake up and drink before he could come home.  He came home and rested for a few days and is good as new... sorta.  He has a scar behind his ear, which according to the doctor is healing nicely.  He has to keep the area mostly dry until the stitches are gone.   They will dissolve. Then he wanted us back today so that he could check how he was healing and if there were answers back discuss them.  (I wrote the top half after I wrote the second half when I realized I hadn't talked about the biopsy yet.)

    

   We are back from doctors office.   Still no answers!!!  I am getting so frustrated. I am so happy that they are being so thorough, but we've been going to all these different doctors and are being told one thing and then another.   

    I really do like Dr. Sharma.  He has been so nice and he seems like he really does care.   But I found out today that he might not be the one to do the surgery?!?   He was the specialist the specialist sent us to.  If he's not doing it, who's going to do it???  

   So, our news from today:   Dr Sharma said that they talked about Cameron's case in their little counsel thing and they are all in agreement that they don't think it's the normal type cancers.   They feel its not malignant at this time.  Yet none of them know what it is.  Or have any idea.   He said that there is a pathologist here who is one of the top in the country who is the next one to read Cameron's biopsy. He said he might not be the last one to see or try to read them, but he is the next one.   Then when they find out for sure what it is (and that might take longer than he first thought), he'll call me to discuss the results and then we'll schedule ANOTHER CT scan, but this one will be a specialized scan of his right temporal bone something or other.  He said that Mountain Medical Imagining can do the scan again so Cameron can see his friend Kirk there.  And I'm so glad it's a CT scan and not an MRI.   The CT doesn't take as long and he shouldn't have to have contrast.  He said they want an exact image of what's going on and what's being affected.

   He said that when they figure out what it is then they will figure out what they are going to do and how to take it out.  He said that he might not be the one who does the surgery.... So we will be seeing Doctor # 6!!!!   I really am getting tired of going to all these specialist who keep sending me to specialist!! How many more specialties do they need? Dr Sharma should have been the last one.  He's the major head and neck surgeon... who else does he need to see?? How much higher up are we going to have to go? Is that the way it even works? Maybe we are just going sideways.   Though it feels like we are going forward and then back again sometimes... 

    The surgery definitely won't be before Christmas so he can have a good Christmas and not be in pain.  It's just me that has to worry... and I don't have to worry, but I will be worrying.  It's my right to do so. lol

   He did so well on his biopsy. He didn't complain about pain much but has had several night terrors since then.   He didn't sleep well at all once the bandages came off. So he stayed home from school Monday and Tuesday. (the bandages came off Sunday night).   

   He really is a trooper.  He has handled all this with an amazing attitude.  He has been just as happy and pleasant as he ever is.   I don't know how he does it, but I want to be like him when I grow up.  Even when he wasn't feeling the best he was still trying to be happy.  I will be taking lessons from him for sure.    He woke up from the anesthesia so peaceful and calm, and they said that most kids wake up fighting or mad.  I even had a few friends caution me that that might happen.  I got lucky this time I guess. Pat even made it to the hospital just after they wheeled Cameron into recovery.  So when he woke up his dad was there.  He really liked that. 
  
   So that's what has been going on... and I still have no answers.   And I'm getting so tired of going from one doctor to have them send me to another doctor.