Monday, January 7, 2013

A tumor?? No, really? Shocking!!!


   A little sarcastic?? Maybe... 
 
   Ok, so I FINALLY get to touch base with the doctors office, after playing phone tag all morning. I was getting gas so I could head out of town and this was my phone call. 
 "Hello, is this Sarah?" 
 "It is." 
  "Hi Sarah, this is Gayla from Dr. Sharmas office and I wanted to make sure that you got my message about your appt. with Mountain Medical this morning."  
   "I got it, thanks." 
   "Ok, I was just making sure."
   "Yes, I got it.  Did you also have the results of the biopsy?"  (I thought that's why she called) 
   "Umm... Yeah, hang on a sec." 
   "Ok" 
    Wait for about 2 minutes..... 
   "Ummm... Did Dr. Sharma call you at all?"  
    "Nope. I've only talked to you." 
    "Ok, hang on a sec."  
  Wait another few minutes.....
    "Ok, well the pathology report says that it's not malignant so it's definitely NOT cancer. So that's good.  And it says that it is a tumor and will need to be surgically removed."  
     "Ummm... Ok."   I'm thinking, that's it! That's all your going to tell me?? I already knew everything you just told me!!" 
    "When is your next appt.?"  
   "You didn't schedule us one." 
  "Ok hang on a sec." 
Waiting for about 5 minutes......
     "Ok, so when we get the results of today's scans in, Dr. Sharma will present Cameron's case to the counsel (thing that they do) on Wednesday and then they will decide where to go from there. So you should get a call towards the end of the week." 
    By now, I'm running late to get to the imaging place so I just thanked her and hung up. And growled loud enough that the guy at the gas pump next to me looked at me like he wanted to ask if I was ok, but scared to do so because I growled so loud.   I smiled slightly at him, but it may have come out looking more like a grimace because he truly looked scared after that. If I see him again, I'll apologize.   She didn't really tell me anything I didn't already know except that its for sure not cancerous!!! Grrrr!!!!!!!! 

     When we got down to the imaging place (they totally rock BTW) we were a few minutes late and when we walked in I was asked if they told me they'd be doing another IV for contrast.  I said no. Thinking, it's a CT scan, they didn't do contrast last time and wondering how or why I tell Cameron that he's getting another shot.  So I filled out the paper work including permission to start an IV, took it back up and she tells me she asked and we weren't getting an IV today.  YAY!! So I tell Cameron, good news, no IV.  Then someone else brings me out a paper to sign and its a consent to start an IV!! I was like WTH??? So I signed it and politely gave it back.  Then they took us back and guess what?!?  NO IV!! Yay!!! But before they took us back, a doctor came out and says I have a question. I'm a bit confused.  Did they tell you it was a Giant Cell Granuloma?? I said no,that they only told me it was a tumor.  He said and where are we doing the scan??  I said right here, pointing to Cameron's ear.  I said I was told they were doing a fine cut temporal bone scan.  He said that's why I'm confused.  Giant Cell Granulomas are usually in the jaw. 

  I looked it up when I got home.  I can only find less than ten cases in the US of Giant Cell Granulomas in the temporal bone.   The two case studies I found were both adult males. None in kids. But both those guys had theirs on the right side too. 
      So I guess by the end of the week, I might know more... For now, we are, AGAIN stuck in waiting mode. 
  I'm so thankful to know for sure that it is not cancerous.  Everything else I can deal with. 
I'd also like to say, I'm not 100% sure that it is a Giant Cell Granuloma, cause she didn't tell me that on the phone.  She just said a tumor.  :/  which we've known for ever. 

  

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